Archive for February, 2010

RDI Feedback…

Tuesday, February 23rd, 2010

OKay!!!  I know you all are interested in the RDI feedback on my first session with Sam in the Kitchen on Video!

First of all, if you don’t know Jennifer Perry, then you are missing out on a lovely and positive person!  She found one really positive interaction between myself and Sam that she praised highly…but it was only for 15 seconds!!!!  But really y’all, for my first time, I thought it was a good start.  :-)

So, for nearly the whole session (over 25 minutes), he was either racing ahead, or “controlling” my arms, or simply doing his own thing.  But for 15 seconds, I cleared my throat, and wrinkled my eyebrows enough to get him to look at me and follow what I was doing.  I was the “guide” and he was the apprentice, and for 15 glorious seconds, he was involved in a “shared” experience with me.  One that I did not verbally prompt!  I’m glad I caught it on video, so I can watch it over and over!

Her evaluation of those 15 seconds was that Sam is discovering the value of looking at me, and that it was his discovery because it was unpromted!  Her advice to me was this…become a more assertive guide in my actions.

I’m glad I have you all to share this with, because people with neurotypical children would not understand what a great 15 seconds this is for me!  I’m setting up for another video session after school today.  I’m basically assigned to do the same thing–anything goes, but make it nonverbal, I’m the guide (be assertive), he’s the apprentice, and I still can not tell him these rules, he is on the road to a discovery…

Yours in quest of recovery,

Dr. Jennifer Duke

RDI–My First Assignment!

Thursday, February 18th, 2010

Today…I will update you all on my family’s journey with RDI.  We are working with a great RDI Consultant–Jennifer Perry.

The initial parent training and child assessment (the RDA) is now behind us and we have had our first assignment!!!!  YAHHHH!  OKAY…here is what we did over the weekend during the snowy cold weather…

Each parent individually, has been assigned to pick ANY activity to do with Sam, BUT (here’s the catch), we can not talk during the event or tell him what to expect or prepare him in any way.  We CAN use facial expressions and body language, and nonverbal vocal communications as a last resort…hahaha!  I was specifically asked by our RDI consultant to NOT tell him any of the “rules”–so that he could discover them on his own.  This whole discovery concept IS dynamic thinkingThe KEY to RDI!

So, I decided that we could make something in the kitchen.  I got the recipe and divided all ingredients into two sets…his set and my set.  I had about 7 bowls on my side of the counter and (of course) 7 bowls on his side.  We looked like we were at Kitchen Stadium with the video camera set up too!!!  We were assigned to add the SAME INGREDIENTS into the mixer at the SAME TIME.  Sam is supposed to watch me, and observe which bowl I choose (because I specifically did not put them in order), and how much content I put in at a time.

OKAY…so here’s what really happened!  You may laugh WITH me, but not At me! hahaha!  He started picking up bowls and dumping stuff in the mixer..of course!  Then I had to “scowl” my eyebrows and face (which he did not notice).  He started charging ahead more…I had to shake my head (he did not notice).  He turned on the mixer and dry contents started flying up and out of the bowl…I then tried a nonverbal vocal communication (already at my last resort:-)–”uhhuhh” and he looked at me then and said,” are you talking to me?”  I smiled and shook “yes!” loudly!  then, I did the whole, raise my shoulders and head and eyebrows and pointed to the next ingredient and then indicated a WAIT sign with my hands together and lifted to a stop position.  I pointed to all the bowls and stopped at the next one, picked it up and waited on him–he was no longer looking at me, but had the right bowl in his eager hands.  He dumped in all its contents and set the bowl down and LOOKED at me.  I had to indicated approval with my face, so I smiled.  I also had to indicate that he still was not doing exactly what I wanted/needed him to do, which was to add the ingredients AT THE SAME TIME AND SPEED AS ME.  You see, I am supposed to be in charge of time and speed, and he is supposed to be MATCHING to me and WATCHING me and FOLLOWING me.    So now, I started to slow even more and to even turn my back on him to indicate that I was not ready to restart the activity.  He began to get a little frustrated.  At this point, he actually grabbed my shoulders and swiveled me around, and took my forearms and went to the one remaining bowl and (my arms and hands were like a crane picking up freight, but under his control)   picked up the last bowl.  Then, he let me go and picked up his last bowl–which was already empty, I may add!  Then, we poured together on his eyebrow raise and head tilted–so, he was getting the concept that we had to DO IT TOGETHER, but missing the concept that I was in charge.  Meanwhile, I had a facial scowl of disapproval.  He poked his fingers to the corners of my mouth and made my lips smile, then he hugged me, turned and left the scene…WHEEEW!!!

I was exhausted!  I cleaned up while my husband was uploading the video to the RDI website.  We looked at the video and evaluated the “movie clip.”

What did I learn?  What did Sam learn?

I really thought this would be a snap.  I could not believe what a disaster it turned out to be.  He used me like a tool.  It brought me back to his toddler years, when he would to take my hand and point my finger to what he wanted, and then use my hand to pick it up and give it to himself…or use  my hand to turn pages of a book…etc…  I thought about all the hard work my husband and I have done all these years.  But mostly (I realized NOW) has consisted of teaching “turn taking” and “waiting” on his turn.  He used to take every one’s turn, roll the dice for all players, move all pieces, and pull all cards.  He will now wait for his turn pretty regularly.  But, I NEVER worked on completing activities TOGETHER.  I thought I was “doing” things together—but now I realize we were doing activities side by side or turn taking–which is really independent play with pauses for the other player.

This cooperative activity is a whole new level of communication and interaction.  I also learned that I was right to sign up for RDI.  I do not know everything rigth to do.  I may know biomedical treaments, but I need help from an expert on RELATIONSHIP DEVELOPMENT for my child. 

I did not even know what I did not know—does that make sense?  And I do not know how to help Sam on my own.

Now, I’m waiting for Jennifer Perry’s response to the video upload.  She is very sweet and positive, so I know she will not say, “what a disaster!”  But that is how I feel right now.

I’l let you know her response ASAP!  I’m excited though, to be at least trying to make progress!!!!  I can not WAIT for my husband to do his video!  Is that mean of me?  :-) !!!

Yours in the journey,

Dr. JDuke

Remove, Replenish, & Repair = Recovery! PART III

Tuesday, February 9th, 2010

REPAIR is the topic today!

I discussed Remove and Replenish in the last 2 posts.  Repair can happen in two ways.  One is a passive way…in other words, providing SUPPORT to the body’s natural detoxification process and natural methylation pathways.  The other way is more active and is usually in the form of CHELATION THERAPY.  The goal of REPAIR is DETOX!

There are many ways to support your child’s natural detox process.  One way is to stimulate the organs responsible for detox, which are, Liver, Kidneys, Colon, and Skin.  Simple and obvious steps to take are to drink more fresh pure water, and provide daily opportunities for your child to sweat.  Also, making sure that your child poops everyday keeps toxins in the colon from re-entering the bloodstream (the recycling of substances from your digestive system back into your blood stream is called ENTERO-HEPATIC circulation).  Another way to increase sweating is with an Infra-red sauna.

One of the fastest, safest and easiest ways to support detox is Methyl B-12.  Basically this “skips” the weakened methylation step( often weakened by Mercury itself OR a genetic mutation) and provides your child’s body with plenty of PRE-Methylated B-12 in which to perform its many and varied functions (neurotransmitter production, glutathione production, cell membrane function, hormone production and neuronal healing).  Methyl B-12 has a definite healing effect and has been responsible for my own child’s recovery!  The protocol I follow was developed by Dr. James Neubrander and consisits of an injection 3 times per week for 8 weeks with no other changes, to determine improvement in your child’s symptoms. If improvement is detected, then I advise staying on MB-12 for at least 18-24 months.

I usually start MB-12 early in the treatment regiment of my patients for 2 reasons. Number 1:  I LOVE IT!  I like to get the most improvement ASAP, so that all other therapies that your child participates in can be fully utilized.  My son looked at me in the eyes and told me he loved me for the first time, unprompted the day after his first MB-12 injection!  Number 2:  Most tier II and III supplements get MORE fully utilized if there is plenty of MB-12 around, and who wants to waste good supplements?

Other great detox support supplements are Folinic Acid, DMG, TMG, N-acetyl-cysteine, amino acids (Taurine, Leucine, Iso-leucine, Valine), Coenzyme Q-10, all antioxidants (vit D, C, E, A).  Other liver support supplements are Silymarin (derived from Milk Thistle) and others.

Another modality which really worked on my son is HBOT–Hyperbaric Oxygen Therapy. Basically, a child, and usually a parent gets into an airtight chamber, and then a pump increases the air pressure inside (it’s like being in a pressurized cabin on an airplane).  There usually is an Oxygen concentrator pumping in more O2.  You lay in the chamber for 1-2 hours at a time, while watching your portable DVD, and then decompress.  That is called a DIVE, and usually the protocol is set up for 40 hours in 4-6 weeks, with a month “rest” followed by another round of 40 dives.  If you want more info, please read The Oxygen Revolution, by Dr. Paul Harch.  Basically, at a higher pressure, more O2 is dissolved into your bloodstream and increases perfusion to the brain, while reducing oxidative stress to the brain and whole body.  Mostly HBOT is used for poor wound healing and SCUBA decompression sickness, but HBOT is commonly being used off-label for strokes, brain injury, peripheral vascular disease, and autism.  Check out the before and after PET scans, which show huge improvements on brain blood flow after only 40-80 dives.

Lastly and most powerfully, is CHELATION THERAPY.

No other intervention is rated as high in biomedical treatment as CHELATION.

A chelating agent is a medication that, when given, binds to heavy metals and excretes them from the body, either through the liver (via bile and poop), kidneys, or skin.  Chelation therapy has been successfully and safely undertaken by biomedical MDs on thousands of autistic children with fabulous results.  I will repeat the above statement….

No other intervention is rated as high in biomedical treatment as CHELATION.

I could and should write a whole blog on this topic…but for now I will tell you that if you get to this point, you should have many things in place…such as a great and trusting relationship with your doctor, your child should be on a whole host of supplements to support the removal of heavy metals, and your child’s nutritional status should be top notch.  Sometimes a child is so toxic, that I use a shorter, pulse type chelation protocol to “open up”  metabolic pathways that are blocked.  This treatment is like all other treatments, and is totally tailored to your child.

A word of caution is that you must use an Experienced Biomedical doctor to get the safest and best results for your child.

I hope this helps guide you on your path to RECOVERY!

Your, Dr. Girfriend